For those who are grappling with their own choices of genetic testing, or who are dealing with a new ALSP diagnosis within the family, Erin also reminds them that they are not alone:
“Testing is a personal choice, but it’s a great time to be tested because there are so many opportunities to participate in research and work towards a cure. If your test is positive, our team at Sisters’ Hope has built out protocols. We can connect you with experts. We’re here to give you hope. You’re not alone. You don’t have to do this by yourself. There is a community here that loves and supports you.”
Read the full story here: https://patientworthy.com/2024/02/14/unraveling-genetics-erins-alsp-journey/
