Mission
Through Sisters’ Hope Foundation we envision a world where those affected by HDLS/ALSP have support and knowledge, leading to a better quality of life and one day, the first survivor of HDLS/ALSP.
The mission of Sisters’ Hope Foundation is to support and empower families impacted by HDLS/ALSP by:
- educating the public to increase awareness around this rare disease
- advocating for further research and funding to improve treatment options
- connecting patients and families with this diagnosis to build community and support
- providing financial assistance and resources to those in need
Vision
Through Sisters’ Hope Foundation, we envision a world where those affected by HDLS/ALSP have support and knowledge, leading to a better quality of life and one day, the first survivor of HDLS/ALSP.
Values & Goals
- Honesty & Transparency
- Patience
- Accessibility
- Courage
