The ALSP patient registry pre-study survey is LIVE!
Completing this is the first step for patients who want to participate in the Vigil Neuroscience global digital ALSP patient...
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Kim’s ALSP Story
“In July, I had a genetics test done to see if I carry the CSF1R gene variant the same variant...
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Vigil Neuroscience Enrolls First Subject in ALSP Study
Vigil Neuroscience, a biotechnology company harnessing the power of microglia for the treatment of neurodegenerative diseases, announced today the enrollment...
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Vigil Neuroscience hopes to eventually target ALSP
Vigil Neuroscience has revealed the first condition that it will target: a rare, genetic neurodegenerative disorder called ALSP, or adult-onset...
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Vigil Neuro Announces It Is Launching ALSP Programs
Vigil is conducting an observational natural history study with ALSP patients to better understand the disease and help us inform...
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Bone Marrow Transplant Study on Treatment of CSF1R-Related Leukoencephalopathy
This is the largest series of patients with CSF1R-related leukoencephalopathy receiving HSCT. The study concludes that HSCT can stabilize the...
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How To Host a Pink Lemonade Fundraiser for Sisters’ Hope Foundation
A lemonade stand fundraiser works best during the summer months. Hot days equals lots of thirsty supporters! What you’ll need...
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Heidi Edwards’ Story
I’m Heidi Edwards, President and founder of Sisters Hope Foundation, a non-profit organization supporting families struggling with Hereditary Diffuse leukodystrophy...
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